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- Convenor:
-
Sabina van der Veen
(Leiden University)
Send message to Convenor
- Chair:
-
Sophie Mitra
(Fordham University)
- Discussants:
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Barbra Elsa Kiconco
(MRCUVRI LSHTM Research Unit, Uganda.)
Catharina van der Boor (London School of Hygiene and Tropical Medicine)
Marijn Aalders (Bettery Institute)
- Format:
- Thematic Panel
- Theme:
- Capability measurement and empirical analysis
Short Abstract:
In this thematic panel, we will present interventions based on the Capability Approach in both their design and evaluation methodologies. Challenges in defining and measuring capabilities, and navigating cultural differences, will be addressed. The panel session aims to deepen understanding of the design and evaluation of CA-based interventions that aim to promote human flourishing.
Long Abstract:
In recent years, there has been a surge in interest in adopting the Capability Approach (CA) as a framework for designing and evaluating interventions across various fields. In this panel, we aim to examine the prospective applications of the CA in intervention design and evaluation by convening a group of experts who have delved into its integration within intervention frameworks and their subsequent evaluations.
This proposed thematic panel session aims to present an overview of interventions targeting the enhancement of human well-being across diverse settings and countries. We will showcase examples of such interventions that have effectively integrated elements of the CA, along with reflections on how adopting a capabilities perspective has influenced program outcomes. Additionally, we will explore the inherent challenges associated with defining and measuring capabilities in intervention work, as well as navigating cultural and contextual differences.
In a plenary discussion, we will further examine the challenges and opportunities for future developments and evaluations of interventions. By the end of the session, participants will gain a deeper understanding of how the CA can inform and enhance interventions and their evaluations, with the overarching goal of fostering human flourishing and well-being.
This panel session includes researchers and practitioners:
Catharina van der Boor examined the challenges faced by South Sudanese refugees in northern Uganda, including heightened alcohol use disorders (AUDs) and psychological distress, compounded by socio-economic pressures. Recognizing the dearth of evidence-based interventions tailored to conflict-affected populations, the study introduces CHANGE, a peer-led intervention which aims to bolster mental well-being and quality of life, addressing not only AUDs and psychological distress but also broader outcomes such as capability-based well-being and violence reduction, as assessed by the OxCAP-MH measure amongst others. Through a feasibility trial currently under analysis, the study seeks to evaluate the effectiveness and acceptability of CHANGE among male refugees, informing future interventions and humanitarian guidelines while potentially filling crucial gaps in service delivery.
Barbra Elsa Kiconco examined the gap in assessing the quality of life for people living with HIV (PLWH) and comorbid depression in Uganda by comparing two assessment instruments: the capabilities approach-based Oxford CAPabilities Questionnaire for Mental Health (OxCAP-MH) and subjective wellbeing (SWB) measures. The findings suggest that while OxCAP-MH and SWB instruments capture related but distinct aspects of quality of life and mental health in PLWH with depression, their combined use may offer a more comprehensive assessment of their progress. This combined approach has potential applications in diverse cultural contexts and global mental health research, particularly concerning chronic conditions like HIV.
Sabina van der Veen explored the BigMove intervention, an innovative approach to the provision of person-centred, integrated and community-based care in the Netherlands. The intervention aims to improve the functioning, capabilities and quality of life of people facing a combination of physical and mental health conditions. By empowering participants to make self-directed and value-driven choices in life, the intervention facilitates behaviour change aimed at improving functioning and capabilities. First evaluations of the intervention on improved functioning, capabilities and quality of life will be presented. Moreover, a novel evaluation method has been employed in the intervention, focusing on assessing participants' self-perceived functioning, related goals, and action plans. This innovative approach complements more conventional outcome measures and has demonstrated the ability to capture changes over time.
Marijn Aalders has extensive knowledge of the development and implementation of CA-based care interventions in the Netherlands. Furthermore, she trains and coaches healthcare and social care professionals, as well as policymakers, and contributes to the broader implementation of CA-based care interventions across various domains of healthcare and social services.
Accepted papers:
Paper short abstract:
This study aims to provide insight into self-perceived functioning, goals and action plans and observe changes over time of participants of the CA-based, BigMove intervention. The study highlights a novel approach to capturing change in participants' self-perceived functioning and well-being.
Paper long abstract:
Background
In the BigMove intervention, people with physical and mental health conditions assess their functioning, set goals, and define action plans to achieve their goals recorded in an e-health application using all categories of the International Classification of Functioning, Disability, and Health (ICF). This study investigates whether data from this application can provide insight into participants' self-perceived functioning, goals and action plans and observe changes over time.
Methods
Data from 446 participants were analysed with descriptive statistics to describe self-perceived functioning and the ICF categories related to the 15 most frequently chosen goals. Action plans were analysed using inductive analysis. Changes over time were investigated by comparing assessments before and after at least four months in the intervention.
Results
The data provided insight into the self-perceived functioning, goals and action plans. Also, changes over time were observed. Self-perceived functioning changed from being mainly negative before, to mainly positive after the intervention. While goals were mostly related to the same ICF categories, the action plans changed from more specific short-term to more general long-term plans.
Conclusions
Our study demonstrates that all categories of the ICF can be used to record self-perceived functioning, goals and action plans and monitor changes over time.
Paper short abstract:
The abstract proposes CHANGE, a peer-led intervention, addressing alcohol use disorders and psychological distress among refugees in Uganda. Using a capability framework, a feasibility trial evaluates outcomes including alcohol misuse, psychological distress, and wellbeing.
Paper long abstract:
Background: The conflict in South Sudan has displaced millions to Uganda, where research reveals high levels of alcohol use disorders (AUDs) and psychological distress among refugees. Despite MHPSS guidelines urging AUD intervention, such efforts are rare due to various barriers. Existing interventions are ill-suited to the context and lack psychological strategies for AUDs. Low-intensity interventions like PM+ could bridge this gap but currently lack AUD-specific strategies.
Our study uses a capability framework to evaluate the impact of CHANGE: a novel peer-led psychological intervention that builds on PM+. CHANGE aims to improve the mental wellbeing and quality of life of refugees affected by psychological distress and alcohol misuse in humanitarian settings. As part of our intervention development process, we conducted a study to test the acceptability, feasibility of delivery, and perceived impact of the CHANGE intervention, which is described in this paper.
Methods: A feasibility trial was conducted in the Rhino and Imvepi settlements in Uganda. Sixty-six adult male South Sudanese refugees with i) elevated levels of alcohol use; and ii) psychological distress were assigned 1:1 to enhanced usual care (EUC) or CHANGE and EUC. The CHANGE intervention was delivered by non-specialist workers over six weeks. Outcomes were assessed at baseline and 3-months. The primary outcome was percentage of days abstinent, measured by the Timeline Follow Back at 3 months. Secondary outcomes included percent of days abstinent at 3-months and alcohol misuse, psychological distress (i.e., depression, anxiety, posttraumatic stress disorder), functional disability, perpetration of intimate partner violence, subjective wellbeing (measured by OECD wellbeing questions and the EQ-5D), and capabilities-based wellbeing (measured by the Oxford Capabilities Mental Health [OxCAP-MH]) at 3-months.
A mixed methods process evaluation was also carried out to investigate competency, dose, fidelity, feasibility, and acceptability. Qualitative interviews were done with non-specialist workers (N=5), participants (N=10), family members (N=10), outcome assessors (N=5) and supervisors (N=5).
Results: The data of this feasibility trial are currently being analyzed and results are expected by March 2024.
Discussion: Humanitarian guidelines offer limited direction on addressing alcohol misuse and psychological distress in conflict settings, partly due to a lack of evidence-based interventions. The CHANGE intervention aims to fill this gap, addressing neglected issues sensitively. Besides mental health, CHANGE targets capability-based wellbeing, quality of life, and inter-partner violence. The ongoing feasibility trial will inform a larger trial in Uganda. If successful, the intervention manual will be openly accessible, aiding humanitarian service delivery.
Paper short abstract:
The study compared the OxCAP-MH and SWB measures for assessing quality of life in Ugandan PLWH with depression. Results indicate that combining both instruments offers a comprehensive assessment of interventions, with potential applications in global mental health research for chronic conditions.
Paper long abstract:
Globally, 31% of people living with HIV (PLWH) suffer from depressive disorders (DD). The HIV+D study, a cluster-randomized trial, sought to assess the effectiveness of integrating managed care of DD in people receiving routine HIV care in Uganda. This study addresses the gap in assessing quality of life for PLWH with comorbid depression by comparing two assessment instruments: the capabilities approach-based Oxford CAPabilities Questionnaire for Mental Health (OxCAP-MH) and subjective wellbeing (SWB) measures.
1115 PLWH and depression from 40 HIV clinics in Uganda participated in this study. Self-reported data on OxCAP-MH and SWB were collected at baseline, 3 months, and 12 months. Concordance correlation coefficient (CCC) and Spearman's correlation coefficient were used to assess agreement and validity, respectively.
The CCC of 0.331 (95% CI, 0.279 – 0.384; P<0.001) indicates a moderate level of agreement between OxCAP-MH and the life satisfaction dimension. The standard error (SE=0.027) associated with the CCC implies that the CCC estimate is precise. The Pearson correlation coefficient indicates a moderate positive correlation (r=0.331). The Bland-Altman analysis suggests a small average difference of -0.002 (95% CI, -2.269 - 2.265) between OxCAP-MH and the life satisfaction dimension with a reduced major axis (RMA) slope of 1 that indicates accuracy in the agreement due to the proportional relationship of the variables. There is a moderate and statistically significant convergent validity (r=0.330; P<0.001).
The CCC of 0.287 (95% CI, 0.233 – 0.342; P<0.001) indicates a weak level of agreement between OxCAP-MH and the happiness dimension. The Pearson correlation coefficient (r=0.287) and the CCC are both statistically significant (P<0.001). The average difference between OxCAP-MH and the happiness dimension from the Bland-Altman analysis is -0.001, with a standard deviation of 1.193 (95% CI, -2.340-2.338). The slope of the RMA line indicates accuracy and precision in the agreement (slope=1). There is a weak but statistically significant positive convergent validity (r=0.264; P<0.001).
The results suggest that, while OxCAP-MH and SWB capture related constructs, they likely tap into distinct aspects of quality of life in PLWH and depression. This aligns with their theoretical underpinnings. OxCAP-MH, grounded in the capabilities approach, assesses individuals' opportunities, while SWB measures directly capture individuals' evaluations, reflecting their emotional state and overall life satisfaction. This distinction highlights the potential benefits of employing both instruments to capture more dimensions of life quality and wellbeing. OxCAP-MH provides insights into capabilities, which might not be directly reflected in subjective reports of wellbeing.