Send message to Authors

Short Abstract

Exploring technology and data ethics issues in health settings across different countries through the Health Social Laboratory stakeholder engagement model, our paper analysis underpins the value of cross-national dialogue for fostering relevant engagement in technology-driven health environments.

Abstract

This paper explores the Health Social Laboratory (HSL) stakeholder engagement model as a framework for analyzing how technology and data ethics are addressed in neurodegenerative diseases health settings across different countries and regions. The study is based on a comparative thematic analysis of three laboratory discussions – two in Italy and one in the Netherlands – that engage health stakeholders such as clinicians, researchers, patients, caregivers, and policy experts, in the exploration of technological and ethical implications of health data management and research.

The comparative perspective guides the analysis through the thematic coding of the three laboratory discussions. Labels are created to help understand how data treatment and ethical concerns are expressed across different local realities. By comparing Italian and Dutch cases, we aim to identify points of convergence, such as shared attention to patient privacy or data security, as well as divergences that may stem from national policy frameworks, institutional cultures, or participatory traditions.

This study highlights shared challenges and context-specific strategies to address technological and ethical issues of health data management and research, points to the value of cross-national dialogue for refining ethical frameworks in technology-driven health environments, and contributes to ongoing discussions on how institutions (particularly health ones) can foster relevant engagement within health research and innovation.