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P379


How to reconnect theory and practice of patient and public involvement? 
Convenor:
Carina Pittens (VU University Amsterdam)
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Chair:
Carina Pittens (VU University Amsterdam)
Format:
Combined Format Open Panel

Short Abstract:

Despite the great attention to and the many initiatives on patient and public involvement, PPI remains an add-on to the traditional health system. There seems to be a gap between academic conceptualization of PPI and involvement practices . How can theory and practice be reconnected?

Long Abstract:

Since the 1990s, a call is made for a more active and prominent role for patients in health decision-making in order to make the health system more responsive to patients’ needs. Despite the great attention to PPI, a systemic turn to a needs-oriented health system has not (yet) taken place. PPI remains an add-on to the traditional health system. Initiatives remain often disconnected from actual decision-making and are more or less insignificant.

Despite widespread principled support, there appears to be lack of theoretical delineation and interpretation of PPI. Some argue that the purpose of involvement is often vague, inconsistent or not described. Both literature and practice remain stuck in a "conceptual muddle" and the principles underlying the why, whom and how remain unclear. However, particularly in STS-literature, many theoretical frameworks have been described that provide guidance for "good involvement". But Greenhalgh (2019) already concluded that these conceptualizations seem to be barely used outside their development setting.

There seems to be a gap between academic conceptualization of PPI and involvement practices. How can theory and practice be reconnected, thereby stimulating the systemic turn to a needs-oriented health system?

In this open panel, we invite a variety of contributions that explore this reconnection, such as:

- Discussions on the (value of) theory's contribution to PPI practices

- Discussions about epistemic equity and (in)justice, and the potential contribution of theory

- Reflection on (un)successful PPI initiatives using PPI theories and frameworks

- Agenda-setting exercises on next steps to be taken in this reconnection

Aligned with the conference theme Making and Doing, we are particularly interested in interactive contributions – using (co)-creative methods - where the collective knowledge and experiences of the audience is used for reflection and inspiration. We are interested in multistakeholder contributions (including experiential knowledge) from multiple national and healthsystem contexts.

Accepted contributions: