This panel will bring a critical reflection on embodiment and identities related to chronic illness from a variety of theoretical and empirical approaches. Relationship between medical knowledge and experience of disease will be discussed. This panel is a spin-off of Panel 038 on self-management.
In past decades, chronic diseases have become a salient social, political and healthcare issue. Living with a chronic illness is characterised by a set of tensions and uncertainties, which strongly challenge social sciences research. In this panel, relationship between medical knowledge and experience of disease will be theoretically and empirically addressed. The panel aims to bring together ethnographic and qualitative contributions to a better understanding of chronic disease as embodied forms of living and "identity work" done by people living with it. The panel will thus highlight reciprocal influences and tensions between mainstream current medical practices and subjectivities. To do so, it will question to which extent medical knowledge is part of what makes chronically ill people patients, persons, human beings, subjects, etcetera. How the ways of knowing exhibited in current medical practices affect (allow, limit, enhance, etc.) the embodiment and subjectivities of chronically ill people? How do they deal with uncertainty? How do they relate to medical knowledge and make sense of heterogeneity, difficulty, and indeterminacy? This panel will tackle these questions in order to shed light on critical aspects related to embodiment and identity in chronic illness. This panel is a spin-off of the Panel 038 "The self-management of chronic disease: critical perspectives".
"I have learned to live like a sick person": negotiating personhood in a centre for psychosocial reintegration in Bucharest
"illness changes the way you feel": managing the lived experience of chronic disease and emerging challenges to the biomedical hegemony
The manifold sites of information: managing uncertainties and responsibilities in transplant medicine