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Accepted Paper:

Reordering the machinery of participation with young people  
Hannah Cowan (London School of Hygiene and Tropical Medicine) Hana Riazuddin (King's College London)

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Paper short abstract:

In this presentation we share three preliminary tactics for disrupting the hegemonic production of medical knowledge through working with young people. These tactics take into account, and even find productive, our own complicities and limitations of being early-career researchers.

Paper long abstract:

In this presentation we reflect on our ongoing work that attempts to redistribute the agenda-setting powers of researchers, research funders, and the complex of private and public partnerships in the biomedical sciences. Despite calls for diversification, the current landscape is dominated by a traditional medical habitus that prioritises discovery science. This has moral and political consequences. Simultaneously, we have seen a slow rise in top-down infrastructures of public participation in medical science. While we are critical of the resulting machinery of participation, we believe in its premise that knowledge and expertise are everywhere. In our research project – called Utopia Now! – we have been seeking to involve young people in deciding the future of biomedical research. However, this project is itself premised on a number of our own complicities with the power held by universities and research infrastructures. Here we explore three preliminary tactics through which we attempt to make these complicities politically productive, taking into account the limitations of working as early career researchers. We find that our mediation between researchers, young people, and policy makers is not only integral for re-politicising medical research, but also changes our understanding of knowledge production as a process of reordering, sorting, and sharing.

Panel P19b
Complicity: methodologies of power, politics, and the ethics of knowledge production II
  Session 1 Thursday 20 January, 2022, -