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Poster Short Abstract

This poster presents a critical overview of current practices, gaps, and opportunities in patient and public involvement and engagement (PPIE) in cancer research. We reflect on lessons learned and propose concrete pathways for meaningful, equitable collaboration.

Poster Abstract

Patient and public involvement and engagement (PPIE) in cancer research is gaining momentum, yet its implementation remains uneven, fragmented, and often symbolic. This poster maps where we currently stand in PPIE across the cancer research continuum—from basic science to clinical trials, from policy advocacy to survivorship.

Drawing from recent projects, institutional collaborations, and co-design experiences, we identify both good practices and structural barriers. Our work reveals that while cancer research increasingly acknowledges the value of patient input, mechanisms for sustained, equitable collaboration are still lacking. Key challenges include limited training for researchers, tokenistic engagement, unclear roles for patient partners, and lack of funding for involvement infrastructure.

We highlight successful PPIE strategies, including advisory boards, citizen juries, co-created communication tools, and patient-led priority-setting workshops. These examples show the transformative potential of shared leadership—when backed by resources, institutional will, and cultural change.

The poster invites attendees to reflect on the urgent need to move beyond rhetoric toward impact-oriented, inclusive PPIE. It presents a roadmap to strengthen involvement practices—through policy, evaluation, and patient capacity-building.

By asking “Where do we stand?” we hope to spark dialogue on where we go next. Our goal: to normalize PPIE as a core pillar of cancer research that is not only scientifically robust, but socially responsive and ethically grounded.