Paper short abstract:

The paper explores how self-monitoring care infrastructures involving PROMs reconfigure responsible citizenship in an age of Value-driven-healthcare.

Paper long abstract:

Arguments for technology-assisted self-monitoring for treatment and prevention as means for empowerment of patients and citizens are running an ever-closer partnership with arguments for healthcare system transformation toward so-called value-driven healthcare (Porter 2010). Related is a change in self-monitoring arrangements from primarily relying on self-administered clinical tests, such as blood-pressure, peak-flow, or blood glucose, to also or primarily relying on continues monitoring of patients' self-experienced health in the form of online provided PROMs - patient reported outcome measures. Data from PROMs have been cast as a central lever for a healthcare system based on above all the value it provides for its patients. Caring for yourself and sharing your data is also caring for the welfare system.

In this paper I will draw out some strands of inquiry in an upcoming project on eHealth assisted self-monitoring and self-care among breast cancer survivors which primarily rely on symptom-reporting and PROM. I am interested in exploring the enactments of responsible citizenship within this and similar self-monitoring care infrastructures where patients are invited to participate in - not just the management of their own health problems but equally in the rearrangement of the health services in more 'responsible', 'sustainable' or 'value-driven' ways. I want to engage with the concept of "response-ability" (Martin et al. 2015) that may help understanding what happens when people are asked to care for themselves and for the welfare state through technologies of participation.