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Accepted Paper:
Incentivizing genomic data in an age of ecological peril: who and what belong in the collective?
Mette N. Svendsen
(University of Copenhagen)
Olivia Spalletta
(University of Copenhagen)
In Denmark, genomic and health data from the national population are framed as collective resources for precision medicine. Based on ethnography , this paper discusses who and what belong in the collective when incentivizing population data for precision medicine in an age of ecological peril
Long abstract:
Precision medicine is a field of huge economic and political investments. In Denmark, genomic and health data from the national population are framed as collective resources for the development and realization of life-saving precision medicine for Danish patients. However, in political debates and everyday practices of precision medicine, there is no discussion of present and future environmental collapse, despite the field’s huge energy consumption. To us, this absence raises questions about the collective good in precision medicine. Whose good is imagined and worth attending to? What role does and should ecological peril play in producing and mobilizing data resources for human health? Based on ethnography from Denmark, we discuss who and what belong in the collective when incentivizing genomic and health data for precision medicine.