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Accepted Contribution:

An equitable digitalization of the biogenome: a twin commons approach  
Lotte Asveld (Delft University of Technology) Bob Kreiken (Delft University of Technology)

Short abstract:

In the race to whole-genome sequence global biodiversity, the scientific community risks creating new digital inequalities. Integrating recent data justice and commons scholarship, this paper posits that a twin commons approach to biodiversity and genomic data can guide a just digitalization.

Long abstract:

Biodiversity is under threat globally. As a way to map, monitor and preserve the vast reservoir of biological information contained in species, large genomic databases are being built to conserve species and to support biotechnological innovation. However, these openly accessible genomic databases raise questions about whose norms and knowledge practices are reproduced in data governance and whose are marginalized. Indigenous communities who preserve biodiversity and researchers from the biodiversity-rich global South may not see equal value in contributing to genomic databases as researchers from the global North because they do not have the necessary resources to generate, access and utilize the data, or because the data is not managed in accordance with norms that suit their particular interests.

A way to approach this potential genomic data injustice is by conceptualizing both biodiversity and genomic data as a twin commons that are governed according to shared norms. Access to either of these commons implies adherence to these shared norms. The norms may stipulate who can profit from the resources within the commons and under what conditions. This can increase mutual trust and break the cycle of exploitative practices derived from historical inequalities. Indigenous communities, for instance, could be more willing to share relevant knowledge if they would have a say in how their knowledge is applied. This paper aims to formulate such possible norms for biogenome projects, taking into account both open science norms, access and benefit-sharing policies, and the CARE principles for Indigenous data.

Combined Format Open Panel P074
The limits of Open Research: critical views and new perspectives
  Session 1 Tuesday 16 July, 2024, -