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Accepted Paper:
Minimizing data for multiple goods – setting up quality registers
Karoliina Snell
(University of Helsinki)
Heta Tarkkala
(University of Helsinki)
Short abstract:
The presentation deals with multiple goods embedded in the vision and purposes of newly founded Finnish national quality registers. Particularly, we focus on the conflict between several imagined purposes and the need to minimize the data set and the efforts to record the data.
Long abstract:
The goal of national quality registers in Finland is to evaluate and benchmark quality of health care and develop the quality through systematic follow-up. Quality register data are visioned to be used by many actors and serve many goods: doctors in peer development; knowledge management in local, regional and national level; medical research and development; and in transparent communication about services to citizens. In this presentation, we address these multiple goods embedded in the vision and purposes of newly founded Finnish national quality registers. Particularly, we focus on the conflict between several imagined purposes and the need to minimize the data set and the efforts to record the data. Minimization is a legal and technical requirement but also concerns the workload of doctors and nurses. In addition, it poses challenges to the ways data can be used as well as what and whose questions it can answer.