Paper short abstract:

I propose to present on my ongoing work in diabetic data art (Thulin 2022) as a way of exploring how people with diabetes relate to their data. I will share an online artwork that allows visitors to experience and contribute to the production of music and visuals based on blood-glucose data.

Paper long abstract:

I propose to present on my ongoing work in diabetic data art (Thulin 2022), with a particular emphasis on my recent project Sensing Sugar (2023), an online artwork that allows visitors to experience and contribute to the production of music and visuals based on blood-glucose data.

Sensing Sugar plays on the relationships between embodied sensations and quantitative data. In daily life, blood-glucose levels trace diabetics’ continual navigation between numbers (blood sugar measurements, grams of carbohydrates ingested, units of insulin injected, minutes of exercise performed etc.) and feeling (the jitteriness, irritability, and weakness of low blood sugar; the sluggishness, brain fog and fatigue of high blood sugar etc.).

Typically, numbers are taken to be the arbiters of how well one has been managing their illness and what the expected outcomes might be. The number of numbers collected and the ways of making them interpretable is steadily on the rise. This has been referred to as a “diabetes data revolution” (Kowalski, 2019) fuelled by developments in sensor technologies, such as Continuous Glucose Monitors (CGMs).

Looking beyond their diagnostic utility, Sensing Sugar proposes to re-connect the blood-glucose measurements that diabetics collect multiple times a day to feeling and affect through the mediation of audio and visual synthesis. The project creates data-driven music and visuals that aim not to provide any therapeutic insights on the data, but to provide a meditation on the aspects of diabetes and data collection that overflow biomedical interpretative logics, offering an alternative way of sensing blood sugar.