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Short abstract:

This presentation focuses on temporal aspects of Long Covid patient knowledge enactment and mobilization, drawing from interviews with key figures in the Swedish Covid Association and an advocacy and support network of doctors with Long Covid.

Long abstract:

In this presentation, we present a larger project on Long Covid, patient knowledge and epistemic communities. The project examines how Long Covid sufferers assemble, produce and mobilize diverse sets of knowledge – what we define as “patient knowledge” (Pols 2014) – about their emergent condition, and considers how this knowledge is recognized by the medical community and its wider circle of actors.

Our focus in this presentation centres on the dynamic mobilization of patient knowledge to propel advancements in the care, management, and research of Long Covid. We delve into the temporalities of patient knowledge, emphasizing how it evolves and its subsequent mobilization. To achieve this, we leverage insights gained from interviews with board members of the Swedish Covid Association, a patient organization, as well as an advocacy and support network of doctors experiencing Long Covid.

The presentation aims to shed light on the temporal intricacies of patient activist mobilization efforts, highlighting their endeavours to influence the timing and pace of advancements in care, management, and research related to Long Covid.