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CP424


New methods for research on/with neuro-medical subjectivities 
Convenors:
Anna Stenning (Durham University)
Cinzia Greco (University of Manchester)
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Discussant:
Angela Marques Filipe (Durham University)
Format:
Closed Panel
Location:
HG-06A33
Sessions:
Friday 19 July, -
Time zone: Europe/Amsterdam

Short Abstract:

The panel proposes that transforming autism research to address global inequities requires new methods which both allow us to think more critically about research based on lived experience and address the implicit ableism and Eurocentrism of biomedical constructions of autism.

Long Abstract:

In this panel, we aim to discuss the intersection of knowledge, methodology and ethics developing around autism as experience, research object and political identity. Current debates around autism and autism research show two main approaches. The first advocates for participatory or emancipatory research with or by autistic people and autistic communities (see, for example, Pellicano 2022; Chown et al 2017). The second argues that we need to re-centre efforts on finding treatments and cures for those for whom existing approaches are deemed insufficient.

The points at the centre of the debate reflect ongoing controversies around the autism diagnosis and its transformations over time, as well as around who is legitimated to talk about autistic experiences. The controversies will likely increase until the definition of autism crystallizes again with the publication of the DSM-6. This panel seeks to explore whether those working on autism research can move beyond understanding participatory, autistic-led or coproduced research and more traditional biomedical research on autism as necessarily in conflict. The panel proposes that it is necessary both to think more critically about lived experience and to explore the implicit ableism and Eurocentrism of biomedical constructions of autism. We will discuss theories and methods for enhancing the reflexivity of conceptual research while keeping sight of the role of empirical research in understanding the heterogeneity of autistic people’s experiences globally. We intend further to use autism as both a case study and a prism to explore wider issues of being subjects and objects of research, and of voice, advocacy and identity within neuro-medical subjectivities.

Accepted papers:

Session 1 Friday 19 July, 2024, -