Paper Short Abstract:

This study evaluates digital media interventions for Mycetoma in Sudan using in-depth interviews, and focused group discussions. Digital media was found to focus on Mycetoma biomedical aspects without adequately addressing its interconnected social factors, specially stigma.

Paper Abstract:

Mycetoma, a disfiguring and debilitating neglected tropical disease (NTD), long languished in obscurity. Prior to 2013, limited research, ineffective treatments, and inadequate global recognition plagued the disease. However, recognizing advocacy as a critical missing link, the Drugs for Neglected Diseases Initiative (DNDi) spearheaded efforts to raise awareness and address knowledge gaps and Mycetoma was included in the 2016 WHO NTD list thereby, spurring further global attention, research, and media engagement.

This study delves into the role of digital media interventions in raising awareness and combating Mycetoma neglect in Sudan.

Employing an anthropological lens, we critically evaluate the production and impact of these interventions, focusing on a short film titled "Hope for a Devastating Neglected Tropical Disease”. Through in-depth interviews with Sudanese media specialists and focused group discussion with community members, we analyze the film's content, visual representation, and perceived effectiveness in addressing interconnected sociocultural factors.

Our analysis sheds light on the complex interplay between digital media, global health initiatives, and local communities in the fight against NTDs. The initiative was found to address Mycetoma biomedical aspects while not adequately considering significant societal factors, influencing health outcomes, especially stigma. By critically examining the narratives and power dynamics embedded within these interventions, we contribute to a nuanced understanding of their potential and limitations in addressing public health challenges in the Global South. Our study suggests that digital media alone cannot bridge the chasm of global health disparities. Unveiling the neglect requires deeper, culturally sensitive anthropological insights to inform interventions advocating for NTDs.