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Accepted Paper:

Lived experience of refugees affected with scabies: Case from Rwanda  
Ursin Bayisenge (Brighton and Sussex Medical School) Gail Davey (Brighton Sussex Medical School) Peter John Mugume (University of Rwanda) Shahaduz Zaman (University of Sussex)

Paper Short Abstract:

This study explored the experiences of Congolese refugees with scabies in Rwanda's Kigeme camp. Initial stigma was due to misconceptions and it changed nuances over time. Refugees' suffering is rooted in structural violence. Medical anthropology is vital to understanding the neglect of scabies.

Paper Abstract:

This study explored the experiences of Congolese refugees living at Kigeme camp in Rwanda who were affected with scabies, and examined the perceptions of their condition and the impact of community discontent on them. The study used qualitative research methods, including interviews, observations, and focus group discussions.

The findings revealed that respondents initially thought that scabies as a sign of opportunistic diseases caused by HIV, poor hygiene and lack of healthy food, but later realized that anyone could contract scabies, leading to a shift in stigma. However, the stigma associated with scabies persisted. The only available treatment, benzyl benzoate, was not well received due to its unpleasant odour.

The study argued that the suffering of refugees is rooted in the structural violence embedded in their global governance system, with conflicts between Rwanda and the Democratic Republic of Congo playing a significant role in the displacement of the Congolese population. The United Nations High Commissioner for Refugees is unable to contribute effectively to the prevention of such conflicts. The study highlighted the need for accurate and comprehensive conversations about the situation of Congolese refugees to address their neglect and improve their access to healthcare.

This study contributed to understanding the stigma associated with visible skin diseases, the unintended consequences of humanitarian assistance, and the potential role of popular medical systems in improving healthcare practices. It also showed that medical anthropology is crucial for understanding the social, economic, and political factors that contribute to the ongoing neglect of scabies in refugee camps.

Panel P017
Unravelling global health disparities: the role of medical anthropology in combatting neglect
  Session 1 Friday 26 July, 2024, -