Author:Leonardo Campoy (PUC-PR)
Paper short abstract:
How autism can be cared? Based on ethnography, I propose to indicate that stimulation and orientation are practiced as a daily way of development and to demonstrate that this "care that develops" is the way how the chronicity of autism is elaborated by its agents.
Paper long abstract:
Biomedical professionals say that autism cannot be cured.
They say that it will remain within the person until her last days of
life. But, on the other side, they say that its damages can be
mitigated, they say that proper stimulation and orientation can reduce
the impact of autism in a person's body and mind. This way of dealing
with this mental pathology is what the biomedical professionals and the
therapists would call recovery for the autistics. Taking stimulation and
orientation together, it can be said that, for autism, recovery is a way
of care that aims to develop the person. To work, this care has to be
intensively done in a daily basis throughout the person`s life.
How this "care that develops" is done in practice? I have been doing
ethnography with professionals and families that deal with autism in
Brazil, accompanying their practices and efforts to bring more "quality
of life" for the autistic. I would like to demonstrate that this "care
that develops" only works if it is practiced in a quotidian basis, that
is to say, if life becomes a never-ending act of stimulation and
This will only be achieved if a collective of persons, actions, ideas
and objects are mobilized. To develop an autistic person, not only the
biomedical professionals and the therapists are working, but, also, a
whole compound of agents are stimulating and orientating the infant. The
family, here, is the main center of this work of collective collaboration.
Living with chronic illness: challenges and perspectives across borders