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Accepted Paper:

Adapting participatory and co-production methods: lessons learned from engaging women with disabilities in lima, peru to explore sensitive topics, overcome challenges, and navigate power dynamics  
Amy Riley-Powell (Institute of Development Studies)

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Paper short abstract:

Drawing on my doctoral research, I bring expertise in adapting participatory and co-production methods to explore sensitive topics with women with disabilities; insights on accessible PhotoVoice and remote data collection; and strategies for balancing decolonial approaches and avoiding tokenism.

Paper long abstract:

In this presentation, I reflect on my doctoral research with women with disabilities in Lima, Peru, focusing on how participatory and co-production methodologies were adapted to explore sensitive topics like violence. Initially, my approach prioritised creating safe spaces where women with disabilities could lead and design the research process. However, the COVID-19 pandemic disrupted this framework, compelling a shift toward co-production with the field team. I worked closely with 4 local field workers who were initially intended as facilitators, to co-design and adapt the research.

We implemented remote data collection, with fieldworkers transitioning into ethnographers, using tablets and cameras to engage in photo-voice, an accessible method for documenting and discussing experiences. The pandemic highlighted challenges including inequalities in digital access and literacy and a lack of private spaces to discuss sensitive topics, necessitating creative solutions to maintain meaningful engagement while ensuring participant safety and adhering to ethical standards. This shift illuminated the complexities of power dynamics in co-production, particularly when addressing sensitive topics in mediated settings.

The experience emphasised the need for flexibility, local partnerships, and inclusive, non-hierarchical research environments. By sharing these insights, I aim to contribute to ongoing discussions about inclusive, decolonial methodologies in global development. I will explore the spectrum of participation, from tokenistic engagement to genuine co-creation, highlighting the potential of participatory methodologies to empower marginalised communities and facilitate social change. This research underscores the importance of centring marginalised voices in the design and conduct of research, particularly in the context of sensitive topics like violence.

Panel P03
Participatory methods in times of crisis - between performative tokenism and decolonial approaches
  Session 2 Wednesday 25 June, 2025, -