Paper short abstract:

With a population of approximately 70 million people living in the UK, we are witnessing a significant increase in diversity. This ethnographic study aims to engage with the Pakistani community and health professionals to collect their perspectives on palliative care.

Paper long abstract:

Although palliative care is a relatively recent addition to modern healthcare, it is becoming increasingly acknowledged as a vital component of all healthcare systems. The definitions of palliative care may vary, even within the same country, highlighting the evolving nature of this critical aspect of healthcare. World Health Organisation (WHO) defines palliative care as a crucial part of integrated, people-centred health services. However, there are still barriers limiting access to palliative care worldwide.

The number of British Pakistani Muslims in the UK has been on the rise. According to the Office for National Statistics, Pakistani Muslims constitute the second-largest ethnic minority population in the UK and the second-largest sub-group of British Asians. The available evidence suggests a growing disparity between the current model of end-of-life care and the health needs of religious and ethnic communities, particularly among Muslims. This is reflected in the poor uptake of advanced care planning and hospice services, including community-based services and on-site care.

This research will provide insights into the various factors, including religious, cultural, social, and economic, that contribute to the low uptake of palliative care in this demographic by adopting an ethnographic approach and interviewing medical practitioners, patients and their family members. Additionally, the study will explore the knowledge, attitudes, and practices of participants with the goal of enhancing the accessibility of palliative care services. By analysing empirical data, the research will generate evidence-based recommendations for improving the uptake, accessibility, and delivery of palliative care services.