Paper short abstract

An exploration of the relationships between the sensory experiences of haemophilia and enactments of citizenship.

Paper long abstract

The sensory experiences of haemophilia are multiplex. Shared experiences of the condition, its treatment and the consequences of that treatment within the nation and across nations motivate a variety of enactments of citizenship. This paper is based on 15 years of fieldwork within the haemophilia community in New Zealand. It explores the relationships between the sensory experiences of haemophilia and citizenship in relation to the themes of this panel.